3 year old boy from Hyderabad To India People suffering from a rare form of spinal muscular atrophy (SMA) were treated with what is said to be the most expensive drug in the world after tens of thousands of donors responded to their parents. Crowdfunding Please allow them to buy it, Hindustan Times Report..
Ayaansh Gupta was given Zolgensma, a gene therapy drug manufactured by. NovartisAveXis, an American biotechnology company owned, especially imported from the United States, after parents Yogesh and Rupal Gupta launched a funding campaign Social media February 4th.
By May 23, the Gupta had already raised Rs 1.6 billion (£ 1.5 million) from about 65,000 donors who were impressed by the story of their son’s plight.
Celebrities, including Indian cricket captain Virat Kohli and his actress wife Anushka Sharma, have a family Achieve funding goals By donating generously.
Ayansh was properly treated with a single intravenous injection at Rainbow Children’s Hospital in Bicrumpli, Second Labard on Wednesday and was placed under close observation before discharge.
“He’s absolutely fine, except for the fever that doctors say is very normal for a few days,” his father said. Hindustan Times, “My son has a designer gene” is proudly sports a T-shirt.
The doctor advised the family to isolate the son for two months to prevent the onset of complications, but declared the treatment successful.
“His immune system is weak, so he can get other infections. Doctors asked us not to allow visitors,” Gupta explained.
Known by the chemical name Onasemnogene aveparbovec, this treatment works by making a new copy of the gene that makes the human SMN protein. Defects in this gene cause SMA.
At the end of last month, the five-month-old baby Arthur Morgan The first British child treated with Zorgensma Thanks to the NHS at Everina London Children’s Hospital.
Indian boys get the world’s most expensive drug when parents raise £ 1.5m
Source link Indian boys get the world’s most expensive drug when parents raise £ 1.5m