According to her mom, Daisy is “the happiest girl you’ve ever met.” That certainly seems to be the case in her physiotherapy session, where a 4-year-old kid laughs, dances, sings, and plays musical instruments.
However, her mother, Collina Gander, also states that her daughter is often revoked due to a lack of general understanding of Down Syndrome.
“As parents, we sometimes feel that no one has great expectations for our children,” she told Sky News. “It’s an old-fashioned stigma.”
Collina was told that Daisy would have Down Syndrome during pregnancy. She said the care she received before giving birth was “great”, but when Daisy arrived, there was a dramatic change until her daughter’s breathing concerns were repeatedly resolved.
“I was always told,’Well, she has Down Syndrome, what are you expecting?'” She said.
Collina, who has four daughters between the ages of eight and 20, knew something was wrong with her baby.
“Do I need to worry more about her because my other kids aren’t doing this?” No, you have to accept that you have a sick child. She was ill, but she doesn’t get sick if she has Down Syndrome. “
Daisy was finally hospitalized three months after being infected with the virus. It radiated her lungs and the other organs were “floppies”, causing severe dyspnea that I saw Daisy do life-sustaining.
“For three months she could have been really struggling, but no one listened to me and you had nowhere to go,” Collina said.
The new Down Syndrome Bill, which is expected to clear the first Commons hurdle when discussed in a second reading on Friday, makes it a legal requirement for people with Down Syndrome to have Corina and Daisy. Designed to put an end to such experiences, their social care needs have been met.
Under the proposed bill, people with Down Syndrome are legally recognized as a specific minority group rather than being treated more broadly as disabled.
Dr. Liam Fox, a conservative former cabinet minister who submitted the bill, told Sky News: [people with Down Syndrome] The right to challenge local governments, health and education authorities if they do not provide care.
“It will give them the right to challenge by law.”
In accordance with the proposed law, guidance will be issued to relevant authorities on the steps necessary to meet the needs of people with Down Syndrome.
“This is the first generation to live longer than their parents because of life expectancy,” said Dr. Fox.
“Therefore, especially dealing with this element of supportive care is urgent to ensure that those who live longer than their parents are dealt with with appropriate dignity and independence.”
Health Minister Gillian Keegan, who provides government support, said: “Health, care and well-being of people with Down Syndrome are absolute priorities for me.
“My beloved nephew’s pastor and proud aunt who lives in this state is pleased to support this bill. He emphasized the disparities that need to be addressed.
“Dr. Liam Fox’s bill and the guidance below will clarify how the needs of people with Down Syndrome should be met.”
Returning to his home in Broxbourne, Hertfordshire, Daisy is playing with two older sisters, Angel (10) and Rihanna (20), who are also caregivers.
“I usually [Daisy] I’ll dress in the morning and give milk at night, “Angel told Sky News.
Their support for daisies is unlimited and unconditional, but there is no doubt that families like her also need help.
“Hopefully [the bill] It will stop the challenges we face. “
“We are always fighting for things, and that will make a big difference to me as a parent.
“When you see you feel [Daisy] There will be a future. “
Down Syndrome Bill To Help People In That State Meet Their Social Care Needs | UK News
SourceDown Syndrome Bill To Help People In That State Meet Their Social Care Needs | UK News