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American Idol Veterinarian Artia Grace talks about her daughter’s rare genetic disorder

previous American idol Contestant Artia Grace talks about her daughter Lennon fighting a rare genetic disorder.

In an interview with Man A 22-year-old musician in the magazine described her difficult experience after Lennon was diagnosed with tuberous sclerosis (TSC) in 10 months. This causes many parts of the body to form benign tumors.

“I was afraid when the doctor gave me a diagnosis of Lennon,” Altea told the magazine.

Difficult: Former American Idol contestant Artia Grace talks about her daughter Lennon fighting a rare genetic disorder.

She continued, “I was taking Lennon to the road with me, but how can I keep it on with all her medical needs?”

TSC affects 1 in 6,000 newborns in the United States. An estimated 50,000 Americans live with this disability.

Lennon was first diagnosed with TSC when he began to experience seizures. Her baby was dying after her condition caused liver failure.

Painful: In an interview with People magazine, a 22-year-old musician described her difficult experience after Lennon was diagnosed with tuberous sclerosis (TSC) in 10 months.

Painful: In an interview with People magazine, a 22-year-old musician described her difficult experience after Lennon was diagnosed with tuberous sclerosis (TSC) in 10 months.

What is TSC?

Tuberous sclerosis (TSC) is a hereditary disease that causes tumors to form in various organs, mainly the brain, eyes, heart, kidneys, skin, and lungs.

Symptoms include seizures, developmental delay, intellectual disability, and autism.

At least two children born each day have a complex of tuberous sclerosis. Current estimates are that 1 in 6,000 live births will be affected by the complex effects of tuberous sclerosis.

It is estimated that about 1 million people worldwide have TSC, and about 50,000 in the United States.

Incidence and severity of various aspects of TSC can vary widely between individuals, even among identical twins.

There is no cure for TSC, but treatments and medications are available for many symptoms.

Most people with TSC can live a normal lifespan.

Information provision TSC Alliance

However, in January 2020, she was able to get a transplant just before her first birthday.

The single mother was auditioned during the 19th season of the long-running ABC show, her episode aired in March 2021.

Prior to her performance, Altea spoke to judges Katy Perry, Luke Bryan and Lionel Richie about her daughter’s health problems.

On the day of her audition, the singer-songwriter received a miserable call from her father. Her father told her that Lennon was hospitalized after tearing her feeding tube.

“I have never missed a promise,” she told People. “I never missed an emergency, so getting on that stage took me all.”

Indigenous people in Chicago said she was particularly inspired by Katy Perry’s encouragement.

She said, “Katy Perry told me that I need to use what I experienced to light under me.

“It was a powerful moment for me to see how music made me understand what was happening.”

After Altea played on Saturday morning, all three judges voted “yes”. This is the original song I wrote while my daughter was in the hospital.

Single mothers said they were impressed by the overflow of support they received from viewers who were also influenced by TSC.

She said to the people, “It made us feel comforted, not alone.”

Altea also said the reaction motivated her to continue her career, thinking of giving up on her staying home with her daughter.

Audition: Single Mother auditioned for her episode, aired in March 2021, during the 19th season of the long-running ABC show.

Audition: Single Mother auditioned for her episode, aired in March 2021, during the 19th season of the long-running ABC show.

The musician said she was helped by the TSC Alliance, a non-profit organization that helps sick individuals and their families.

“The Alliance just creates this beautiful network where everyone helps everyone else,” Altea told People.

“They made an appointment with Lennon with the head of the tuberous sclerosis department, which I didn’t even know existed.”

Support: Single mothers said they were impressed by the flood of support they received from viewers who were also affected by the TSC.

Support: Single mothers said they were impressed by the flood of support they received from viewers who were also affected by the TSC.

If she couldn’t get a transplant after her liver began to weaken, the doctor gave Lennon just a few days to live.

The degree of Lennon’s liver damage requires the donor to die when he learns that the donor’s liver is available, and Artea is “pure joy” before it collapses into sobbing for the family who lost the child. I experienced.

She said, “It just hit me. Another mom just lost her, so my baby will come alive.

“Being in ICU is like the happiest moment of people’s life, surrounded by the worst moments of people’s life.”

Catastrophic: Altea reached her lowest point when doctors told her she wasn't sure if Lennon could survive the surgery.

Catastrophic: Altea reached her lowest point when doctors told her she wasn’t sure if Lennon could survive the surgery.

Artea reached her lowest point when the doctor told her she wasn’t sure if Lennon could survive the surgery.

“They didn’t even know if she would get out of surgery, so she told me to say goodbye to her,” she recalled.

“When she returned from surgery, she was still in a coma and had a respiratory tract that they might never get rid of.”

Looking back on her daughter’s progress after surgery, Artea told people, “She is an absolute animal.”

Strong: Altea looks back on her daughter's progress after surgery and tells people,

Strong: Altea looks back on her daughter’s progress after surgery and tells people, “She is an absolute animal.”

“She is the wildest, most energetic and smartest child I have ever met,” she says. “It’s miraculous that she was as ill as she was.”

Dr. Bijay Vishwanert and Dr. George Yani, Lennon’s doctors at the Los Angeles Children’s Hospital, praised Altea’s courage and dedication to her daughter’s recovery.

There is no cure for TSC, but you can not only maintain a healthy lifestyle, but also manage your symptoms with treatment and medication.

Prior to Lennon’s third birthday, Altea thanked her daughter for her survival and shared her thoughts on how the trials changed her priorities.

She said, “I’ve been touring a bit lately, and at this point I know anything is possible.

“I’m just in a state of reassessment. Lennon got sick was the biggest priority change I’ve ever experienced.

“I took a lot of things for granted, but now I realize that what’s important to me is that I’m spending as much time with her as possible.”

Thanks: Before Lennon's third birthday, Altea thanked her daughter for her survival and shared her thoughts on how the trials changed her priorities.

Thanks: Before Lennon’s third birthday, Altea thanked her daughter for her survival and shared her thoughts on how the trials changed her priorities.

American Idol Veterinarian Artia Grace talks about her daughter’s rare genetic disorder

Source link American Idol Veterinarian Artia Grace talks about her daughter’s rare genetic disorder

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